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Mystery in the Fields

 Ramarao Laxminaraina, a 25-year-old rice farmer, receives dialysis treatment. Anna Barry-Jester

In India, verdant terrain conceals clues to a fatal kidney disease

By Sasha Chavkin

UDDANAM, India — A tangle of green blankets the land amid thick tropical heat. Shady groves of cashew trees strew the ground with juicy, perfume-scented fruits. Men can be seen climbing coconut palms to tap into the trunks for wine. The region’s name, Uddanam, comes from a word in Sanskrit that means “Beautiful Garden” or “Paradise.”

Uddanam’s rich terrain seems an unlikely place for the mysterious strain of illness tormenting the area. For more than a decade, a rash of chronic kidney disease has been striking down the villagers of this remote agricultural belt in the state of Andhra Pradesh, India. In some villages, the disease has impacted from 24 to 37 percent of the population, two to three times higher than elsewhere in the district, according to unpublished results from a study by Harvard Medical School.

As the death toll mounts, the seemingly idyllic region has become stigmatized. In contrast to Nicaragua’s “Island of the Widows,” which is named for the alarming rate of chronic kidney deaths among the community’s husbands, residents of Uddanam say they now have trouble getting married at all.

“Other people, they don’t want to come for marriage,” said Dr. Priya Prathibha, the state medical officer in the hard-hit village of Varaka. “They are not giving any bride or bridegroom to this area, this Uddanam area.”

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Mystery in the Fields

Stories from our partner

Our story on Chronic Kidney disease in Sri Lanka was reported in conjunction with PRI’s The World. Listen to Rhitu Chatterjee's story.

Mystery in the Fields

Mihintale Dhammarakkita Thero, a monk in Sri Lanka, donated his kidney to a high school principal with kidney disease. Mystery in the Fields is a three-part series that explores in text, photos and video how a rare form of kidney disease is killing laborers and crippling communities in three different regions, from Central America to Sri Lanka to India. As the death tolls mount, researchers remain puzzled, unable to definitively uncover the disease’s causes. Anna Barry-Jester

In Sri Lanka, breakthroughs, setbacks and a spiritual touch

By Sasha Chavkin and Anna Barry-Jester

KEBITHIGOLLEWA, Sri Lanka — For two decades, chronic kidney disease has been a mystery and death sentence in Sri Lanka, striking 15 percent of the residents of its north central region.

This summer, after years of secretive official research, a glimmer of scientific hope emerged. The government and World Health Organization announced in June that they identified a key cause of the disease in Sri Lanka: chronic exposure to arsenic and cadmium, likely consumed in food.

Yet in a disease that has confounded experts across continents, even potential breakthroughs come with asterisks. The new report left huge questions unanswered — including where in the country the toxins were found, how they entered the food and what foods were contaminated. The key unsolved question: the extent fertilizers and pesticides contributed to the outbreak.

In Sri Lanka’s lush northern farmlands, the mystery and the death sentences continue. Lacking firm answers from the scientific community, some victims’ best hope for survival comes through the spiritual community — and offers of kidney transplants from Buddhist monks and those they inspire to make extraordinary sacrifices for strangers.

At 21, Sampath Kumarasinghe is among the victims awaiting that miracle.

The soft-spoken farmer was diagnosed last September with kidney damage so severe it had reached its terminal phase: end stage renal disease. Healthy his entire life, he suddenly became feverish and too sick to work in the rice paddies. His mother mortgaged their land to pay for his medical care, and they began the search for a kidney donor. One day, like a vision, a man appeared in his hospital offering to donate his kidney.

“I am only thinking of ways to save my son’s life,” said Sampath’s mother, Punchirilalage Dingiri Manike. “That is what I think of day and night.”

Mystery in the Fields

Slideshow: Mystery in Sri Lanka

By Anna Barry-Jester

Men walk through rice paddies after morning's work near Anuradhapura, Sri Lanka. In Sri Lanka, people with CKDu are predominantly male agricultural workers living in an area known as the "rice bowl."

Anna Barry-Jester

Sampath Kumarasinghe's aunt sweeps dirt outside their home near Kebithigollewa, Sri Lanka.

Anna Barry-Jester

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A farmer tills his rice paddy in Padaviya, Sri Lanka.

Anna Barry-Jester

21-year-old Sampath Kumarasinghe relaxes with family outside his home near Kebitigollewa, Sri Lanka. Sampath has the most advanced form of CKDu, end-stage renal disease. He is slated to have a kidney transplant in the next few weeks, one of the first transplants to take place at Anuradhapura General Hospital.

Anna Barry-Jester

Nurses talk in the dialysis ward of Anuradhapura General Hospital.

Anna Barry-Jester

Sampath Kumarasinghe discusses the next steps towards getting a kidney transplant with nephrologist Rajeewa Dissanayake at Anuradhapura General Hospital, Sri Lanka. The 21-year-old rice farmer has end-stage renal disease.

Anna Barry-Jester

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Sampath Kumarasinghe talks to Ajantha, a potential kidney donor, while undergoing dialysis treatment at Anuradhapura General Hospital, Sri Lanka.

Anna Barry-Jester

Mihintale Dhammarakkita Thero, a Buddhist monk, and high school principal G Gunasena sit outside the educator's home near Kebithigollewa, Sri Lanka. The monk donated a kidney to the principal, who suffers from CKDu.

Anna Barry-Jester

Mihintale Dhammarakkita Thero, a monk in Sri Lanka, donated his kidney to a high school principal with kidney disease. Mystery in the Fields is a three-part series that explores in text, photos and video how a rare form of kidney disease is killing laborers and crippling communities in three different regions, from Central America to Sri Lanka to India. As the death tolls mount, researchers remain puzzled, unable to definitively uncover the disease’s causes.

Anna Barry-Jester

Mihintale Dhammarakkita Thero (center), a monk in one of the regions of Sri Lanka most affected by CKD, donated his kidney to a high school principal with the disease.

Anna Barry-Jester

Buddhists visit the Temple of the Tooth in Kandy, Sri Lanka on Vesak, the anniversary of the day the Buddha attained enlightenment, one of the most auspicious days for Buddhists.

Anna Barry-Jester

Doctors replace a catheter inserted into the neck of Sampath Kumarasinghe. The tube facilitates his twice-weekly dialysis

Anna Barry-Jester

A rice farmer and his daughter outside their paddy fields in Anuradhapura, Sri Lanka.

Anna Barry-Jester

Sampath Kumarasinghe's grandmother cooks by candlelight in their home near Kebitigollewa, Sri Lanka.

Anna Barry-Jester

Mystery in the Fields

Do you know of other outbreaks of mystery CKD?

Our investigation of unexplained CKD among rural workers began as a story about a single plantation in Nicaragua. Then, it became several plantations in the region; next, nearly the entire Pacific Coast of Central America; and most recently, Sri Lanka and India as well.

CKD among rural workers may be a broad international epidemic — and we need your help to figure out how widely it is occurring.

If you have information about another outbreak of mystery CKD, please take a moment to fill out the short form below.

Wendell Potter

Claire McAndrew of Washington, left, and Donny Kirsch of Washington celebrate outside the Supreme Court in Washington, Thursday, June 28, 2012, after a the court's ruling on health care. Evan Vucci/AP

OPINION: ObamaCare's crucial benefits

By Wendell Potter

Politicians who are promising to repeal ObamaCare won’t find any evidence in the Kaiser Family Foundation’s analysis of health insurance costs that the law has caused premiums to skyrocket, as many of those politicians have contended.

On the contrary, premiums have increased on average only 4 percent over the past year, the lowest rate of increase in years, according to Kaiser’s 2012 Employer Health Benefits Survey, which was released last week. Double-digit premium increases were once the norm, especially during the George W. Bush administration. Premiums increased 10 percent in 2004 and 13 percent in 2003.

So the good news is that premiums increased only 4 percent. The not so good news is that, because of all those past double-digit increases, the average premium for employer-sponsored health coverage has reached a record high of $15,745. And because employers have been shifting more and more of the cost of coverage to workers, employees are now paying, on average, nearly 30 percent of that total, much more than they used to. The hike in worker contributions has far outstripped the overall rise in premiums.    

A study published last year in Health Affairs found that the gains in wages U.S. workers made over the past decade were more than wiped out by increases in the cost of health care and health insurance. Kaiser’s annual surveys document that: since 2002, premiums have increased 97 percent, which is three times as fast as wages (33 percent) and inflation (28 percent).

That’s not all the bad news, unfortunately. More Americans are now enrolled in high deductible plans, because that’s frequently all their employers are offering. Kaiser found that the percentage of workers enrolled in plans with an annual deductible of $1,000 or more has increased from 10 percent in 2006 to 34 percent in 2012. The growth has been even greater for employees of small firms.

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Joe Eaton

Reporter The Center for Public Integrity

Before he joined the Center’s staff in 2008, Joe Eaton was a staff writer at Washington City Paper and a reporter at&nbs... More about Joe Eaton